Source of book: Borrowed from the
library
This book is epically long and
information intense, checking in at over 700 pages of small print, not
including the extensive endnotes. It was ten years in the making, and involved
thousands of interviews, most of which never made it into the book. As it is,
the author followed specific people whose stories are in the book for nearly a
decade, following up on their lives. I took a ton of notes, so this post is
going to be long. Fair warning.
To even describe the book isn’t
easy. Solomon starts with the ideas of vertical identity (something that is
common to parents and children) and horizontal identity (something that is not
common to parents and children), and then looks at ten specific ways that these
“horizontal” identities affect relationships between parents and their
children.
This is bookended with chapters
that are specifically about the author. The first is his childhood experience
and relationships with his parents - and his identities vertical and
horizontal. For example, he is Jewish, which is a vertical identity - he shares
that with his parents, and will share that eventually with his children. But he
is also gay, while his parents are not. That is his horizontal identity, and
the way that he and his parents came to terms with his identity sets the stage
for discussing these other identities.
Solomon also has some other traits
that inform his experience and writing. He is prone to depression (a prior book
was about this - it’s an inherited trait in his family), he is dyslexic (more
so than me, but like me, with good education from a parent, has obviously
become quite literate), and he is (although he never says so in the book, it is
pretty obvious) neurodivergent - probably on the autism spectrum.
The closing chapter is about how
he became a parent. A parent in a somewhat complex blended family, which opens
further areas of discussion of the ideas earlier in the book.
Perhaps the central question in
the book is how humans deal with difference, particularly when that difference
causes discomfort, difficulties, challenges, and heartbreak.
I re-read what I just wrote above,
and, while it is, in my view, true, it is also terribly incomplete. The scope
of this book goes beyond a summary.
The book is also intensely
personal - the stories of the people he encounters are each unique, even as the
challenges are widespread. Every parent, every child is different, unique,
fascinating.
For the most part, Solomon is
descriptive rather than prescriptive, choosing to observe, learn, reconsider.
At the times where he does offer what he sees as the best approach, it is
difficult to disagree with him. He operates from compassion and empathy, not
judgmentalism; and his quest to understand rather than lecture means that he
approaches even the most problematic of his subjects with respect and
humanity.
This is to be applauded, and the
main reason I think that even those who may disagree with some of his ideas
will find him thought provoking and just plain decent.
There are a few places in the book
where I did disagree with him in relatively minor ways, and I will note those
as I go along. But I do want to be clear that the disagreements are minor, and
usually about his choices in emphasis or interpretation of factual evidence,
not about moral issues.
To use an example, while his
chapter on transgender children is mostly good, I would have changed a few
things (which, again, I will note in that part of this post), but he is no J.
K. Rowling - not even in the same universe. Usually, the issue is in him giving
(in my opinion) a bit longer leash to discredited ideas than he should,
typically in service of letting his subjects speak, even when they are
objectively wrong.
I will admit at the outset that I
have some skin in this game. I have children for whom gender and sexuality defy
the binary that right wingers insist on, and autism spectrum runs in my wife’s
family. I also am neurodivergent myself, although not specifically one of the
usual diagnoses, and my neurodivergence is one reason that I was eventually
rejected by my birth parents. Like the author, seeing the issues from both
sides - as parent and as child - is interesting, and my experience as a child
has certainly informed how I have chosen to parent my own kids.
Before diving into the text, I
also want to applaud Solomon for using this book to make a powerful argument in
favor of diversity, integration, and human thriving. The world would be a far
better place if more people approached their own lives and the lives of others
with his level of grace.
Son
The first chapter, “Son,”
introduces many of the key concepts, in addition to being a compelling story of
a kid who grew up gay and “effeminate” and took some time to find his way in
the world.
The opening sentence, in fact,
contains so much that is important, that I will quote it and a few more.
There is no such thing as reproduction. When two people
decide to have a baby, they engage in an act of production, and the widespread
use of the word reproduction for this activity, with its implication
that two people are but braiding themselves together, is at best a euphemism to
comfort prospective parents before they get in over their heads. In the
subconscious fantasies that make conception so alluring, it is often ourselves
that we would like to see live forever, not someone with a personality of his
own. Having anticipated the onward march of our selfish genes, many of us are
unprepared for children who present unfamiliar needs. Parenthood abruptly
catapults us into a permanent relationship with a stranger, and the more alien
the stranger, the stronger whiff of negativity. We depend on the guarantee that
in our children’s faces that we will not die. Children whose defining quality
annihilates that fantasy of immortality are a particular insult; we must love
them for themselves, and not for the best of ourselves in them, and that is a
great deal harder to do. Loving our own children is an exercise for the
imagination.
So much there that I wish I had
understood as a child. So many parents view their children as clones of
themselves, in one way or another. On the one hand, my parents didn’t force
their particular hobbies and pastimes and careers and so on onto us. There was
no expectation that I would play high school basketball like my dad, and
it was fine that music became my thing.
On the other, my parents
increasingly (and to this very day) expected that I would be a clone of them in
terms of religious beliefs, cultural preferences, and political affiliation.
These expectations - indeed demands - are what led to the breakdown of our
relationship. The author discusses this phenomenon a bit in the chapter as
well.
For me, with my own children, I
have made a conscious effort (not always successful) to appreciate who they are,
not who I think they should be.
Insofar as our children resemble us, they are our most
precious admirers, and insofar as they differ, they can be our most vehement
detractors. From the beginning, we tempt them into imitation of us and long for
what may be life’s most profound complement: their choosing to live according
to our own system of values. Though many of us take pride in how different we
are from our parents, we are endlessly sad at how different our children are
from us.
I feel this very much, and that is
why I am committed to breaking the cycle if I can. My parents made very
different choices from their parents. And I made very different choices
from either my parents or my grandparents. My children live in far too
interesting times and I know that that fact alone means their choices will of
necessity be different. But I also want them to know that they are free to be
different from me, and that I love them for who they are. (Something I
have not received from my own parents.)
The passage on “horizontal
identities” is good.
Often, however, someone has an inherent or acquired trait
that is foreign to his or her parents and must therefore acquire identity from
a peer group. This is a horizontal identity. Such horizontal identities
may reflect recessive genes, random mutations, prenatal influences, or values
and preferences that a child does not share with his progenitors. Being gay is
a horizontal identity; most gay kids are born to straight parents, and while
their sexuality is not determined by their peers, they learn gay identity by
observing and participating in a subculture outside the family.
As the parent of LGBTQ kids, this
has been very true. It has been an experience to be the safe home for their
queer friends to come to, and I am richer for having that experience. But it is
a subculture I will never be a part of and will never fully understand. It is a
horizontal identity.
As a gay man, Solomon recounts how
his own experience of feeling isolated, then discovering his tribe, and his
eventual realization that being different is an identity that actually brings
solidarity and community.
Having always imagined myself in a fairly slim minority, I
suddenly saw that I was in a vast company. Difference unites us. While each of
these experiences can isolate those who are affected, together they compose an
aggregate of millions whose struggles connect them profoundly. The exceptional
is ubiquitous; to be entirely typical is the rare and lonely state.
None of us are “normal,” honestly.
There is no category of “fully normal in every way” that some people fit in. We
are all divergent, all unique, and all in some way “fall short” of the
specified “normal.” No wonder Imposter Syndrome is near universal.
I should note here that Solomon
discusses the tension between something being an identity and being an illness.
In the case of disabling conditions, he correctly notes that both can apply.
Deafness is an illness but also an identity, as the next chapter explores in
more detail.
I also loved his ideas about
families, and his pushback against Tolstoy in this matter.
All offspring are startling to their parents; these most
dramatic situations are merely variations on a common theme. Much as we learn
the properties of a medication by studying its effect at extremely high doses,
or look at the viability of a construction material by exposing it to unearthly
supertemperatures, so we can understand the universal phenomenon of difference
within families by looking at these extreme cases. Having exceptional children
exaggerates parental tendencies; those who would be bad parents become awful
parents, but those who would be good parents often become extraordinary. I take
the anti-Tolstoyan view that the unhappy families who reject their variant
children have much in common, while the happy ones who strive to accept them
are happy in a multitude of ways.
This leads into a reason the
author gives for writing the book:
Broadcasting these parents’ learned happiness is vital to
sustaining identities that are now vulnerable to eradication. Their stories
point a way for all of us to expand our definitions of the human family. It’s
important to know how autistic people feel about autism, or dwarfs about
dwarfism. Self-acceptance is part of the ideal, but without familial and
societal acceptance, it cannot ameliorate the relentless injustices to which
many horizontal identity groups are subject and will not bring about adequate
reform. We live in xenophobic times, when legislation with majority support
abrogates the rights of women, LGBT people, illegal immigrants, and the poor.
Despite this crisis in empathy, compassion thrives at home, and most of the
parents I have profiled love across the divide.
This book was published in 2012,
and times have become far more xenophobic since. While I think parents
have gotten even better at loving and protecting their divergent children,
society as a whole is moving in the direction of eugenics and genocide. Not
everyone, or even a majority, but those with the money and power.
Related to this is a fascinating
paragraph in the issue of gay rights, something the author cares deeply about
for obvious reasons. He brings up an argument that I hadn’t really thought
about, but which makes a lot of sense.
Much of the debate around sexual-orientation laws has turned
on the idea that if you choose homosexuality, it should not be protected, but
if you are born with it, perhaps it should. Members of minority religions are
protected not because they are born that way and can’t do anything about it,
but because we affirm their right to discover, declare, and inhabit the faith
with which they identify.
Um, yeah. One of the reasons that
I have rejected the right-wing view of sexuality is that there is literally
no argument against gay sex except bigotry. Every single argument
eventually boils down to “we
think God hates gays.” The only argument is a religious one. Okay, I’ll
concede that misogyny is also an argument. In fact it is the root
argument in the religious argument. I firmly believe in religious freedom,
and key to that freedom is that others do not get to use the power of
government to force their beliefs on you.
I will mention in this context the
discussion that followed about how gay fetuses will be gleefully aborted by
anti-gay bigots despite their supposed opposition to abortion the minute a
prenatal test for gayness is developed. And that if a drug were available to
prevent gayness, Evangelicals would line up to use it. Solomon recounts with
dismay that even being subjected to discrimination is no protection against
being a bigot in other areas. His Jewish mother who struggled to accept his
gayness. The lesbian couple with a transgender kid who approved of the murder
of abortion doctors. Black people who hate Jewish people. And so on and on. I
love his concluding point.
Everyone is flawed and strange; most people are valiant too.
The reasonable corollary to the queer experience is that everyone has a defect,
that everyone has an identity, and that they are often one and the same.
Several things have made him
struggle - dyslexia, gayness, depression - but they also made him who he is. I
can relate to that.
The discussion of the question of
disability is fascinating. On the one hand, a disability of any kind can cause
problems for the one who has it. But also, many of the disadvantages exist
because society refuses to accommodate.
Ability is a tyranny of the majority. If most people could
flap their arms and fly, the inability to do so would be a disability. If most
people were geniuses, those of moderate intelligence would be disastrously
disadvantaged. There is no ontological truth enshrined in what we think of as
good health; it is merely a convention, one that has been strikingly inflated
in the last century. In 1912, an American who lived until the age of fifty-five
had had a good, long life; now, death at fifty-five is considered a tragedy.
Because most people can walk, being unable to walk is a disability; so is being
unable to hear; and so is being unable to decipher social cues. It’s a matter
of votes, and the disabled question these majority decisions.
As noted in this context, being
unable to walk is an impairment, but being unable to enter the public library
is a disability - one imposed by majority vote.
This leads into the question of
what is appropriate to do regarding any particular difference that may be a
disability. What level of pain and risk is worth it to “fix” something. And
exactly why are we making the attempt.
How urgent is any problem and how dire is the solution? That
is the proportion that must be entertained. It is both essential and impossible
to tease apart the difference between the parents’ wanting to spare the child
suffering and the parents’ wanting to spare themselves suffering.
I think about this often in the
context of the authoritarian
parenting I endured as a child and teen. I’m sure my parents thought that
breaking my will was for my own good - to spare me suffering, if not in this
life, then surely in the life to come. But was it really to spare me? Or to
spare them the discomfort of a child who challenged them, talked back,
and insisted on following his own conscience rather than theirs?
Another passage haunted me
regarding my own childhood.
A child may interpret even well-intentioned efforts to fix
him as sinister. Jim Sinclair, an intersex autistic person wrote, “When parents
say, ‘I wish my child did not have autism,’ what they are really saying is, ‘I
wish the autistic child I have did not exist, and that I had a different
(non-autistic) child instead.’ Read that again. This is what we hear when you
mourn over our existence. This is what we hear when you pray for a cure. This
is what we know, when you tell us of your fondest hopes and dreams for us: that
your greatest wish is that one day we will cease to be, and strangers you can
love will move in behind our faces.”
My parents desperately tried to
“fix” me. To make me into someone they wanted, that they could love. They
wanted me to not exist, and someone lovable to move in behind my face. Sadly,
they got their wish: my sister. The child that they love for who she is, not
for the performance I was required to put on.
Later in the chapter, Solomon
explains why he relies on stories in this book. He has an excellent
point.
Though I have gathered statistics, I have relied primarily on
anecdotes because numbers imply trends, while stories acknowledge chaos.
As helpful as statistics can be
for many reasons, a book about relationships is, of necessity, about people,
and people are…chaotic.
As a final thought about this
chapter - the one I took the most notes on - I will go with this truth.
While denying the anger and tedium of parenting can be
crushing, dwelling on it is also a mistake. Many of the people I interviewed
said that they would never exchange their experiences for any other life -
sound thinking, given that exchange is unavailable. Cleaving to our own lives,
with all their challenges and limitations and particularities, is vital.
Our lives make us who we
are.
Deaf
Some of my earliest memories
involve deafness. When I was very young, my parents owned three houses on a lot
- we lived in the front one, and rented the other two out. One of the
longest-term tenants we had was a deaf woman from the megachurch we attended at
the time. She was capable of reading lips, but struggled with speech. As my
parents so often did back in the day, they raised us to show respect, be kind,
and do what you can to accommodate others. Unfortunately, what ASL I learned
back then is gone from my memory.
I feel like I have always had deaf
acquaintances, mostly through church, but also in the community. For example, a
worker at our local grocery story. My eldest kid took ASL in college, and has
hung out with the deaf club from time to time over the last few years, which is
pretty cool.
What is definitely true is that
the deaf community is a community. It is bound together in strong ways,
and has its own unique subculture, which Solomon explores in this
chapter.
Interestingly, the deaf subculture
goes way back. As in, there is a record of a thriving deaf community in
the Hittite empire 3500 years ago. That’s before the earliest possible date for
Moses, by the way.
One of the places the author
visits for this chapter is a village in Bali, where deafness is the norm. He
notes that, because everyone is capable of communicating without spoken
language, “where deafness does not impair communication, it is not much of a
handicap.” He also noted that “In this community, people talked about deafness
and hearing much as people in more familiar societies might talk about height
or race - as personal characteristics with advantages and disadvantages.”
This and other chapters also
include a lot of fun history. Like the time Alessandro Volta put metal rods in
his ears and connected them to an electrical circuit. He got a nasty shock, but
also heard sound, implying that electrical impulses were part of hearing. (And
they are.)
Dwarfs
One of the first things I learned
in this chapter was which terms are preferred for people with the various
conditions causing dwarfism. Apparently, “Dwarf” is fine, and “little person”
is too. “Midget” is decidedly not, unless one is a cute MG sports car. Like
many other areas, certain terms, originally descriptive, have become slurs. So,
as we always should, check before using a word.
If you want a fairly deep dive
into the causes of dwarfism, this chapter will give you that - throughout the
book, Solomon can’t help nerding out about whatever he is writing about. That’s
one reason the book is so long, but also why it is a good read. Context
matters, and he always tries to provide it.
Medically speaking, “dwarfism”
refers to any person who is four feet ten inches or shorter due to a medical
condition. So, my mother barely missed the cutoff on size, although I do
not believe she has any specific medical condition that led to her
height.
Any chapter like this is bound to
get into some weird territory, such as the controversy over “dwarf tossing.”
Apparently, it is expressly banned in a handful of states, but technically
legal in others. And there seems to be some dispute within the community as to
whether it is a valid way to earn a living, or a dehumanizing spectacle. I
guess it never occurred to me that this might be the subject of legislation,
but there you have it.
More seriously, though, is a
problem that recurs throughout the book. Historically, the existence of bodies
that are unusual - humans that don’t fit the majority definition of “normal” -
has been blamed on the parents. And particularly the mother.
Unusual bodies have been described throughout history as
reflections of sin, as omens from the gods, as the basis for laughter or
charity or punishment.
Even today, anti-LGBTQ groups
insist that if being gay isn’t a choice, it comes from bad parenting -
particularly a mother who is too cold. Or too smothering. Or something. Blame
the parents.
I’ll just mention one other
discussion that stood out: limb lengthening. This is an ethical minefield in
every possible way. It is an extremely painful process that takes over a year,
and has to be done to minor children. Is it worth it? Is it an attempt to cure
a “defect” that doesn’t really exist? It’s definitely worth a read for all of
the different perspectives Solomon is able to show - particularly from those
who have dwarfism.
Down
Syndrome
One of the great heartbreaks of
the last decade is the moral disintegration of my former faith tradition.
When I was a kid, I remember the
churches I was a part of embracing disabled people in a way that the larger
culture did not. In particular, churches integrated kids with Down Syndrome in
a way that made them feel a part of it all, and trained us impressionable young
humans to see disabled people as fully human and deserving of respect and
kindness.
Yes, back in the day, Evangelicals
were on the front lines of disability rights. Hard to believe now, right?
Because these days, they are
cheering the dismantling of laws and agencies that protected the disabled, and
are also ecstatic about the stripping of healthcare access for the disabled.
Medicaid has got to go, right?
So, reading this chapter was
emotionally troubling in a way that the others often weren’t - it reminded me
of what I used to have, and no longer have: membership in a religious community
that gave a rat’s ass about other people.
There are plenty of interesting
things in this chapter. One thing I did not know, for example, is that Down
Syndrome isn’t just something that has existed since humans first evolved - it
is found in chimpanzees and gorillas as well. Presumably a common ancestor was
prone to it. In any case, Down Syndrome is caused by a random mutation, not a
recessive trait, although older parents are more likely to have a child with
Down.
Also highly fascinating is the
extended discussion of the effects of intensive interaction with infants and
children with Down.
Many specific techniques are invaluable in addressing
particular needs, but the long and short of it is that disabled children, like
nondisabled children, thrive on attention, engagement, stimulation, and hope.
Autism
This chapter is one of the more
personal ones for me. Autism runs on my wife’s side of the family, and many of
her relatives are on the spectrum. One of my kids shows some traits as
well.
One particularly excellent facet
of this chapter is the way that the author discusses the issue of causation.
Autism is a spectrum and a syndrome, not a specific disease like Down Syndrome
or dwarfism. We don’t actually understand what genes cause it, or even which
ones determine specific traits. It is more a constellation of symptoms and
traits than a single disease.
Because of this, there isn’t any
easy “cause” that we know of, other than that, like literally every other
mutation-based issue, it is slightly more common in children of older
parents.
Autism is also so different in its
manifestations. There is a huge difference between someone who struggles with
social cues, and someone who is non-verbal and plays with their feces. Not all
autistic people struggle with noise or textures, and not all are capable of
hyper-focus. The spectrum isn’t just a line between “unable to function” and
“is able to find coping mechanisms,” but a whole three-dimensional puzzle of
interacting traits and symptoms.
Solomon argues that this really
makes autism not a single thing at all, but a bunch of related things. I think
he is likely right about this.
For the most part, this chapter
was really good. I did have a few quibbles. First, and most problematic, is
that he gives too much space to the vaccine lie. Not that he says it is true -
he does note that the extensive study of the issue has revealed zero
connection.
What he fails to do, in my
opinion, is to lay out the truth clearly: it was always a fabricated lie.
Andrew Wakefield and his financial backers literally falsified data with the
goal of selling a product. This is why he was stripped of his medical license
and why his “study” was retracted.
This wasn’t a mistake, it was a
grift, a fraud perpetrated on the parents of autistic children, that has been
unfortunately magnified by irresponsible media, moronic celebrities, and now
the brain-worm infested charlatan in charge of Health and Human Services.
Solomon should have made all of that clear.
The other issue I had is that the
chapter tends to focus more on lower-functioning children - the ones with
profound disability - at the expense of a hard look at how society marginalizes
all autistic traits, even the ones which might be seen as adaptive. I mention
this because in the other chapters, he spends more time on how society could
make life easier for disabled children and adults. It’s a matter of emphasis,
not substance, however.
Part of my quibble here may be
because I recently read Oliver
Sacks’ book with a chapter on autism, and it was so good that I wish
Solomon had taken a similar approach.
There are so many good things in
this chapter, whatever my quibbles, and I do want to quote some of them. For
example, this bit of dry humor:
It sometimes seems that every parent whose child is thriving
feels compelled to write a hubristic volume effectively called What I Did
Right. Many such parents generalize from strategies that may only by chance
have coincided with their children’s “emergence.”
Somewhat related: I
wrote a post voicing my frustration that my parents credited the fact that
I “turned out well” to actions that actually harmed me.
Very related to this is the
question, which Solomon explores at length, of whether “treatments” for autism
are about helping the autistic person, or about making things easier for their
parents.
Many neurodiversity activists
question whether existing treatments are for the benefit of autistic people or
for the comfort of their parents. Idiosyncrasies may be unsettling, but how
much torment should a child go through to relinquish them?
Part of the problem here is that
too many “Autism Advocacy” groups are there to seek ways of forcing autistic
people to be more like neurotypical people, rather than to improve the lives of
autistic people. As Alex Plank of the Wrong Planet website is quoted:
“The organizations that have the best connections are the
ones founded by parents of people with autism, which aren’t going to have the
same priorities as the autistic people themselves, especially if the parents’
idea of success is to make their kid the same as the parents when they were
kids.”
Again, that is back to the
“reproduction” versus “production” problem: are we making duplicates of
ourselves, or are we creating entirely new human beings?
Ari Ne’eman, another autistic
person interviewed had an excellent insight as well:
“Society has developed a tendency to examine things from the
point of view of a bell curve. How far away am I from normal? What can I do to
fit in better? But what is on top of bell curve? Mediocrity. That is the fate
of American society if we insist upon pathologizing difference.”
From Camille Clark:
“Autistic people are valuable as they are. They don’t have
value only if they can be transformed into less obviously autistic people.”
I have many autistic friends,
dating back to Junior High, and I value them - they are good people, just a bit
different.
And another quote, from Judy
Singer, also on the spectrum:
“The Internet is a prosthetic device for people who can’t
socialize without it.”
I mention this in part because I
hear a lot of complaining about the internet and social media and how it
supposedly replaces “real life” socialization. Some criticism is legitimate of
course: the billionaire class uses it for misinformation, for example.
But for many of us, we would be
unable either physically or psychologically to maintain many of our connections
without the internet. I myself hate talking on the phone, and the idea of
having to call dozens of people a week if I wanted to have a connection sounds
like hell. But I can drop an email, or have a brief interaction on Facebook or
Discord. This way I have connections to friends and family across the
continent, or even just the next city over. Beyond that, I have now met several
people I met online (including through this blog) in real life, and they were
exactly the same people in person as they were online. (And they have said the
same about me.)
For introverts generally, and for
autistic people in particular, technology has been a positive in many
ways.
One final thought from this
chapter, which I think may be the best line in the book:
The attempt to dictate black-and-white policy about a
spectrum condition is inherently flawed.
I think this can and should apply
to humanity in general. We are all on a spectrum, a three-dimensional
rainbow of existence and traits and flaws and strengths. Attempting to dictate
black-and-white policy is tremendously harmful, and really only works to
privilege the already privileged and harm the vulnerable.
Oh, and I can’t forget: no chapter
on autism would be complete without a bit of Temple Grandin.
“It would be nice if you could prevent the most severe forms
of nonverbal autism. But if you got rid of all the autism genetics, you’d get
rid of scientists, musicians, mathematicians, and all you’d have left is
dried-up bureaucrats. I see a picture in my mind of the cavemen talking around
the campfire, and off in the corner, there’s the Aspie guy, and he’s chipping
the first stone spear, figuring out how to tie it to a stick, cutting some
animal sinews to do it. Social people don’t make technology.”
Something to keep in mind.
Neurodiversity makes us all richer.
Schizophrenia
I have a lot more experience with
Schizophrenia from my job than I do personally. It doesn’t run in either my
family or my wife’s family, and the people in my life with mental illness have
tended to be on the bipolar or depressive spectrum instead. This is probably
random chance more than anything.
Because of this, I found this
chapter to be full of facts and experiences that I was not that familiar with.
Solomon’s characteristic empathy pervades this chapter, as mental illness has a
profound effect on people and their families.
At the outset, Solomon notes that
Schizophrenia has traditionally been blamed on the parents - the assumption was
that it was caused by abuse. This is, of course, bullshit. As is the related
idea that curing mental illness is simply a matter of positive thinking,
willpower, or moral courage.
I was intrigued to see one of my
favorite philosophers, William
James, put in his two cents. (James also wrote an incredibly influential
book on psychology, one which has aged better than Freud, in my opinion.) James
characterized this metaphysical approach to brain illness as follows:
“The religion of the healthy minded,” celebrating “the
conquering efficacy of courage, hope, and trust, and a correlative contempt for
doubt, fear, worry.”
That contempt is practically the
mantra for White Evangelicalism, by the way. Blame everything - poverty,
illness, suffering - on the victims.
Speaking of which, one of the best
parts of this chapter is Solomon’s evisceration of the way the United States
treats victims of mental illness. He includes some horrifying statistics (which
are actually not at all surprising.)
As of the writing of the book,
150,000 people with Schizophrenia were homeless. One in five people with
Schizophrenia is homeless at any given time.
At least 300,000 mentally ill
people are incarcerated. Very few of those are imprisoned for violent crimes,
and most are there for crimes they would not have committed had they been
properly treated. As much as a quarter of our prisoners are mentally ill.
Basically, we are paying huge sums
of money to incarcerate people for the “crime” of being ill. And it costs us
far more to do so than it would to house and treat those same people.
I sometimes think that the emphasis on insight among
psychotic people is like our focus on contrition among criminals.
Self-awareness and remorse imply that aberrant people are more like us than
their actions suggest, and that consoles us. But they serve little advantage
unless they change behavior.
This will come up again in a later
chapter, but it certainly applies here. Mass incarceration of mentally ill
people isn’t fixing anything, and costs us more than treatment. The only reason
to continue to do this is a misguided sense of revenge mixed with fear.
Disability
The title is short, but not that
specific. This chapter looks at children with serious, debilitating
disabilities. The term the author uses is Multiple Severe Disability (MSD)
which encompasses a wide variety of diagnoses, from brain damage to physical issues.
For the most part, the cases looked at are ones that involve mental issues
rather than just physical, so they involve mostly people who cannot speak for
themselves. (A contrast to other chapters, where the children very much do
speak.)
Perhaps more than any other
chapter, this one is filled with ethical minefields. Everything from selective
abortion to puberty prevention and a whole lot in between. Navigating this
chapter was difficult for that reason - all the things you might think are
easy, or have a single correct answer turn out to be wicked-complicated and
often no-win. Solomon’s approach of listening, thinking, and giving grace to
people for whatever decisions they make is about as good as any of us can
do.
More than with the other chapters,
these are parents dealing with utterly life-altering issues that have profound
and mostly negative effects. You don’t have the hope of medication or
treatment. There are few work-arounds that result in a more normal life. And so
there is a lot of grief and ambivalence.
Alan O. Ross writes in The Exceptional Child that
parents’ expectations “invariably include that the child will be able to
surpass, or at least attain, the parents’ level of socio-cultural
accomplishment.” He continues, “When the child does not conform to this image,
the parents must learn to cope with the dissonance between their image of ‘a
child’ and the reality of ‘their child.’” The tension often has less to do with
the severity of the child’s disabilities than with the parents’ coping skills,
the dynamics among healthy members of the family, and the importance the parents
place on how people outside the family perceive them. Income, time available to
focus on the child, and support outside the family are all significant
factors.
I have seen this in families I
have known and know. Some people cope incredibly well. But they are often aided
by economic stability, good insurance, and so on. I also have seen churches
step up and become the “village” that is needed. As I mentioned previously,
this used to be one of the bright spots about organized religion, but it seems
to be giving way to a Social Darwinist approach, which is a devastating loss.
As a person unconnected to a church for the last 9 years, I have tried at least
with the people in my life to be a help, not a hindrance.
I’ll end with the way the chapter
ends: with the issue of ambivalence.
The dark portion of maternal ambivalence toward typical
children is posited as crucial to the child’s individuation. But severely
disabled children who will never become independent will not benefit from their
parents’ negative feelings, and so their situation demands an impossible state
of emotional purity. Asking the parents of severely disabled children to feel
less negative emotion than the parents of healthy children is ludicrous. My
experience of these parents was that they all felt both love and despair. You
cannot decide whether to be ambivalent. All you can decide is what to do with
your ambivalence.
And this is why Solomon doesn’t
condemn the parents who found themselves unable to deal with a profoundly
disabled child, and found other alternatives.
Prodigy
This chapter might at first seem
out of place. But it really isn’t. When talking about prodigies, we are not
talking about highly intelligent children as a whole, but ones who demonstrate
an unusual ability at an adult level at a very young age.
Solomon chooses to look at musical
prodigies rather than the other sorts, but one could do the same for math or
art or any other expression.
These are children who are
different in such a significant way that they really are not able to have a
“normal” childhood. As a musician, I certainly know about prodigies. I am not
one of them - I have some level of talent, but mostly the willingness to put in
a lot of work. Most of us professional musicians are like this,
actually, and that includes most world class performers.
I recently went to an event with
Itzhak Perlman, and he played early footage of childhood recitals. To be sure,
he was really good, but he also played like the kid he was. Well above
average talent, but a lot of hard work. And not a prodigy.
Likewise, many child prodigies
never become world class adults. And this also leads to a near-impossible
dilemma for parents.
A parent is the progenitor of much of a child’s behavior,
telling that child repeatedly who he has been, is, and could be, reconciling
accomplishment and innocence. In constructing this narrative, parents often
confuse the anomaly of developing fast with the objective of developing
profoundly. There is no clear delineation between supporting and pressuring a
child, between believing in your child, and forcing your child to conform to
what you imagine for him. You can damage prodigies by nurturing their talent at
the expense of personal growth, or by cultivating general development at the
expense of the special skill that might have given them the deepest
fulfillment. You can make them feel that your love is contingent on their
dazzling success, or that you don’t care about their talent. Prodigies invite a
sacrifice of the present to the putative future. If society’s expectations for
most children with profound differences are too low, expectations for prodigies
are often perilously high.
This chapter also includes a good
bit of background of the beliefs regarding genius, from Plato to the present.
Unfortunately, any honest history of this would have to discuss eugenics, and
this book does. In fact, there is a name that appears that is of particular
interest to me, as his racist and authoritarian beliefs inspired Hitler…and
also one of the false
prophets (James Dobson) that my parents followed, to the great detriment of
my family. I’ll quote the bit about him from the book:
Paul Popenoe, who advocated forced sterilization of the
“inferior,” asserted that “no son of an unskilled laborer has ever become an
eminent man of science in the United States.” Hitler was well versed in the
work and ideas of Galton and Popenoe; indeed, Popenoe enthusiastically
collaborated with his Nazi counterparts, and defended them until it was no
longer advantageous to do so.
Dobson’s ideas, and indeed the
organization he founded, Focus on the Family, is nothing more or less than the
repackaging of Popenoe’s eugenics with a spray paint of religion to hide the
swastikas. Dobson worked for Popenoe, borrowed his ideas, and had Popenoe write
the forward to his first book. The line from Hitler to Popenoe to Dobson to
Trump is literally a straight line.
On a more positive note, I loved
the discussion of absolute pitch. I have a version of this, as do most
string players (and many musicians in general), although not at the level of
some. I can, indeed, name pitches by hearing them, but only within about a 3
octave range. I am hopeless at very low and very high notes, and most
proficient in the range of the violin and viola. Not coincidentally,
instruments I play regularly.
In the book, there are
descriptions of people - mostly the prodigies - who easily hear the pitch that
non-musical sounds are at. And often complain they are out of tune. And yes, I
totally do that. I name the pitches of motors and electronics and all kinds of
stuff. Birds too. It does indeed bother me when something is out of tune, even
if it isn’t even a tune.
Unsurprisingly, some fairly famous
people end up in this chapter. One is Scott Frankel, a Broadway composer best
known for Doll and Grey Gardens. But before that, he was a piano
prodigy. His difficult relationship with his parents mirrors that of many of
the subjects of this book - parents who projected themselves onto their
children in a controlling manner. Much like the father of pantheon prodigy
Mozart did. A couple quotes from this passage:
“She wanted to be in charge of where I was going to go to
school, who my friends were going to be, what career I was going to have, whom
I was going to marry, what I was going to wear, and what I was going to say.
When I started to veer from her notions, it enraged her. She was mercurial,
carnivorous, and boundary-disrespecting and thought of me as an extension of
herself. My father was unable, or unwilling, or both, to protect me from her.”
Um, yeah, that sounds a lot like
my parents. In my case, the control came at least somewhat from both of them,
not just my mom, although her need for control lasted into my adulthood more
than my father’s.
When he told his parents he was gay, they were livid. “I
resented the parochial affection,” he said. “You get the whole package. You
can’t pick the shiny bits from the other bits.”
I want to tell my parents this as
well. You get the whole package. You can’t just use me for the parts you like,
and demand I give up my identity for your comfort and bragging rights.
And believe it or not, Frankel’s
experience was less insane than that of violinist Vanessa-Mae. Her mother
controlled everything, including the sexualized album cover released when she
was a teen. But it gets worse! She was not allowed to have friends, because
that might distract her.
And worse!
Her mother said, “I love you because you are my daughter, but
you’ll never be special to me unless you play the violin.”
And worse!
Vanessa-Mae chose a new manager when she was twenty-one, “desperately
hoping for a normal mother/daughter relationship.” She wanted companionship
instead of supervision. Her mother has not spoken to her since.
Yikes.
While many performers are self-involved, it is often the
parents of prodigies who are most obviously narcissistic. They may invest their
own hopes, ambitions, and identities in what their children do rather than who
their children are. Instead of cultivating curiosity, they may sprint for fame.
Though they sometimes seemed pitiless to me, they were seldom vindictive; the
abuse they perpetrated reflected a tragic misunderstanding of where one human
being ends and another begins.
This chapter is nearly as
disconcerting as the one on disability, because it too raises uncomfortable
ethical dilemmas that do not have neat answers.
Rape
This is another interesting
choice. And yet another that raises ethical issues. I’ll get to those.
The chapter focuses on children
conceived as the result of rape, so fair warning that reading this chapter
could be seriously triggering. There are some graphically violent rapes, but
also a lot of child abuse, sexual and otherwise. There are some seriously
fucked up males in this chapter, make no mistake.
Solomon is correct, however, that
being the product of a rape is a debilitating condition. It can (but doesn’t
always) result in difficulties in the relationship between the mother and
child. It results in serious and unnecessary social stigma. And, unavoidably,
it leaves the child with a complicated sense of self and connection (or not) to
the child’s biological father.
The one most fixable, of course,
is the societal one: as Solomon points out, “Society is likely to judge both
the mother and child unkindly.” This should not be so.
One thing that is truly excellent
about this chapter is that Solomon clearly understands that rape isn’t really
about sex, but about power. It is a violent and dominating expression of a
power differential. And not merely the physical size differential, but the
social power of males over females in our patriarchal society. (One need only
look at the fact that Trump has spent his entire adult life preying on women
and children, with zero consequence to understand that reality.)
It was interesting to run across,
once again, authors Randy Thornhill and Craig T. Palmer, and their
pseudo-scientific defense of rape as a darwinistic advantage. (The best
takedown of this is Jaron Lanier’s brilliant and timely (if really nerdy) essay
against cybernetic totalism, “One
Half A Manifesto”.)
I want to discuss one of the moral
dilemmas in this chapter by mentioning a personal experience. The moral
question, of course, is whether one should abort a pregnancy that resulted from
a rape. This is heightened by the fact that a significant portion of rape
victims are minor children. (The Ohio
case of the 9 year old is just the tip of the iceberg.) As most people are
able to understand, putting a child’s body at risk with a pregnancy and birth
at that age is morally appalling and cruel.
On the flip side, though, plenty
of raped children are pressured into abortions that they may not want.
Let me say at the outset that I
think the anti-abortion view on this is, without doubt, the most morally
repugnant approach, completely disregarding the rape victim’s needs and
humanity by reducing her to an incubator for a fetus. Whatever the difficulty
of the moral issues involved, they should not be solved by government intrusion
into the womb.
I’m not going to attempt a full
defense of the pro-choice position in this post, although I have considered
writing a series. Suffice it to say that the anti-abortion industrial complex
is younger than I am, and lies about literally everything, including theology
and church history.
What I think is more interesting
in this context is the examination of the emotional territory. As Solomon
notes, some children conceived in rape have gone on to become the most
passionate anti-abortion crusaders.
I knew one of these. She is the
mother of a former friend (who has gone rabidly and obnoxiously right wing,
which is why we don’t talk these days), and was the result of a rape. And not
just a rape. Her biological mother (as she found out many decades later) was
raped at age 13 by her stepfather. As happened back then, the victim was sent
away for the pregnancy and birth, was forced to give up the child for adoption,
and the incident was never again mentioned.
Unfortunately, this person found
her mother’s story and identity only after her mother had died, so they never
got to talk.
But, because of this background,
this person was vehemently anti-abortion.
One can understand the emotional
reason, of course. To imagine one’s self as not existing is traumatic. Perhaps
even more traumatic than realizing one will die someday. So, to cope with the
very real possibility that one might not have existed, one can turn that
existentialist crisis to advocacy.
The problem, though, is obvious:
any of us could have never existed.
I have five children. It is super
easy to imagine a world in which we had stopped at four. If we had, my youngest
would never have existed, and the world would have missed out on their unique
personhood.
But we stopped at five instead. So
child number 6 never existed. He or she would have been great, I’m sure,
because all my kids are great. But that child never had a chance to exist. Is
that a moral wrong?
This goes for any of us. Our
parents may never have met. They may have been infertile. If they delayed
parenthood, we might have been different people.
You can go down this rabbit hole
endlessly, of course. Every child I didn’t create is a child that never had a
chance to exist. And neither did that child’s descendants. There is a lot of
“what if” regarding theoretical children. Maybe we might look instead at doing
better for the ones who are actually born. Just saying.
Crime
I was not expecting this chapter
to be as good as it was - it really is quite thoughtful. Plus, Solomon not only
met with children and parents, he followed up for years afterward, to see where
things went.
One of the points he starts with
is that, for the most part, crime isn’t a vertical identity. Most criminals
have to figure out how to do antisocial things on their own.
Obviously, there are exceptions -
the Trump family comes readily to mind, as to other figures of organized crime.
And sure, there are some families for whom substance abuse is an
intergenerational illness. But a surprisingly high percentage of those who commit
non-drug crimes come from parents who have no criminal record.
One thing that was quite
fascinating in this chapter is the difference between those criminals who grew
up in horrible situations and those who came from good homes. For the most
part, trauma, neglect, abuse, and so on, tend to lead to criminality through
predictable paths: the joining of a gang to find belonging, for example.
In contrast, those who came from
good backgrounds really tend to be actual psychopaths, devoid of conscience.
Those are the freaky ones that defy easy answers.
Juvenile crime results from the interplay of the genetics,
personality, and inclinations of the juvenile himself; the behavior and
attitudes of his family; and his larger social environment. The idea of the bad
seed seems outmoded, but some people seem to be born without a moral center,
much as some people are born without a thumb. The genetics of decency are well
beyond our primitive science, but despite boundless love and support, some
people are geared toward violence and destruction, lack all powers of empathy,
or have a blurry sense of truth. In most people, though, the criminal potential
requires external stimulus to be activated; the intense, internally determined
psychopath of the movies is unusual.
We are experiencing right now the
results of putting psychopaths in charge of our government. I also have
personal experience of the destruction in a family when someone with
psychopathic traits is allowed to run amok. Our society’s greatest failure may well
be our bizarre love affair with narcissists and sociopaths.
What is clear from this chapter is
that what the United States is doing to address crime is mostly
counter-productive. Prisons tend to increase recidivism rather than reduce it.
Incarceration for mental illness fails to solve the underlying issues while costing
more. Meanwhile, wealthier sociopaths - like, say, Trump - are allowed to run
free and cause far more damage than a petty crook could ever dream
of.
Even those in law enforcement know
this.
Fight Crime: Invest in Kid, an organization led by more than
twenty-five hundred police chiefs, sheriffs, prosecutors, and others in law
enforcement, states, “Those on the front lines in the fight against crime know
that it’s impossible to arrest and imprison our way out of the crime problem.”
Another observation is interesting
to me:
Criminality is an identity, and like any other form of
organized brutality - football, war, arbitrage - it can beget great intimacy.
The social imperative is to suppress criminal behavior, but that should not
preclude noticing its identity. I deplore violence, but I recognize the
military intimacy it allows men who have no other occasion to bond. Indeed, I
recognize that the conquests by which the map of the world is drawn derive from
the loyalty and aggression of young men.
I haven’t even gotten into all of
the family dynamics in this chapter, but those are fascinating as well.
Transgender
If you had asked me a decade ago,
I would never have imagined that transgender issues would be on my radar. Now,
it has become a defining issue for our family, and I have had my world greatly
expanded as a result.
As I mentioned, I have kids for
whom the gender binary does not work. I am not going to give out personal
details, particularly in this vicious political climate, but suffice it to say
that I have first-hand experience as the parent of a transgender child.
I can say from this experience
that literally everything the right wing says about transgender people
is an absolute fucking lie. Everything. It’s all gross, vicious, nasty hate,
lies, and slander.
Fortunately, Solomon very much
gets this.
I did note a few quibbles with
this chapter, and I will start with those, while also noting that these are
minor. If everyone in our society was as gracious and decent as Solomon is in
this chapter, the world would be a far better place, particularly for
transgender people.
My first quibble is that in places
he uses “transman” and “transwoman” rather than the preferred “trans man” or
“trans woman.” For those unaware, the difference is between defining
transgender people as somehow a foreign species, rather than acknowledging that
a transgender man is in fact a man, and a transgender woman is a woman.
Since this book was published in
2012, however, I am not sure whether that preference was known, or even if it
was a thing. Thus, it might be like running across “colored” in an old book -
it would have been an acceptable and non-bigoted term when it was used.
The second issue comes in a
passage about gender-affirming surgery. My issue is, as with most of my
quibbles, one of emphasis and contextualization.
Solomon notes the one-percent
regret rate on gender-affirming surgeries for transgender people. But he does
not mention either that gender-affirming surgery is done all the time on
cisgender people. Most non-cancer-related mastectomies are done on cisgender
men, for example. And he does not mention that those surgeries come with a far
higher regret rate. It would have been helpful had he highlighted that.
But, these more minor issues
aside, I think the chapter overall is good. It is heartening to read about so
many other parents who have done the right thing and embraced and loved their
children for who they are.
Let me start with the opening
paragraph.
Western culture likes binaries: life feels less frightening
when we can separate good and evil into tidy heaps, when we split off the mind
from the body, when men are masculine and women are feminine. Threats to gender
are threats to the social order. If rules are not maintained, everything seems
up for grabs, and Joan of Arc must go to the stake.
Solomon also correctly notes that
transgender issues are gay issues, because both are rooted in the policing of
gender expression and the enforcement of the gender hierarchy.
Those who are ignorant about homosexuality and transgender
culture tend to confuse and conflate them with reason: homophobia has always
targeted gender nonconformity.
Because this book is about parents
and children, I am happy to see that Solomon also takes the time to think about
- and ask about - the effects on parents. This does not in any way detract from
the fact that the primary person affected in all of this is the transgender
child. But, like with any of the other situations described in this book,
parents too are affected.
Many parents of trans kids described to me grieving for the
child they had lost, even as they gained another.
I can say from experience that
this is true. I can also say that it is far more difficult to break the neural
pathways that lead to using the wrong pronouns or using a deadname than I
expected. Patterns exist at the subconscious level that resurface when you
don’t expect. Fortunately, my kids have been gracious about this.
I also do want to make clear that
this feeling of loss doesn’t mean disappointment or lack of love. Most of us
parents of trans kids understand that we lost what we thought we had,
not what we actually had. The child that exists now is the same one that has
always existed. The emotional landscape doesn’t match the intellectual
knowledge, and emotions aren’t something we can help feeling. I do want to
assure any of my kids who read this that I love them for who they are, and
wouldn’t trade them for the child I thought I had.
I should also give a trigger
warning on this chapter, because there is some really nasty, hateful stuff in here
as well.
For example, there is a now
thoroughly discredited case study of a person who was “treated” for feminine
behavior, and used as an example of how gender expression can be changed.
In fact, the therapist involved
later joined the Family Research Council (a recognized anti-LGBTQ hate
group).......and was later revealed to be gay himself. Oops.
Unfortunately, the test case
subject committed suicide a few years later, something that is conveniently
hushed up by the anti-LGBTQ lobby, who still claims “success” in treating
“effeminacy.”
There is another harrowing story
about a parent of a transgender kid in the South who had to give up her job and
move away after the Klan targeted her.
Oh hell yes, the root of the
anti-transgender movement is the Klan. Surprise! Who would have thought that a
group that dehumanizes people of color would also hate those who don’t conform
to rigid ideas of gender? I am all astonishment!
There are so many good things in
this chapter too, though. So many parents are affirming, so many parents are
thoughtful, and more of the relationships are intact than I expected.
(Statistically, rejection of LGBTQ children by their parents is a huge problem,
fueled by hatemongers in the pulpit. Fortunately, a lot of parents are choosing
to ignore the hate-fueled false teaching.)
There is an interesting line about
parenting that I think warrants quoting.
Perhaps the immutable error of parenthood is that we give our
children what we wanted, whether they want it or not. We heal our wounds with
the love we wish we’d received, but are often blind to the wounds we inflict.
Perhaps the part I liked best in
this chapter was the discussion of how we might move beyond the gender binary
in a healthy direction. This quote from Shannon Minter, a human-rights
advocate, is illuminating.
Minter believes that the unifying challenge for gender
activists is to create a society in which gender is disestablished as a legal
concept. “Everything short of that is going to entail significant incoherence,”
he said. “There is no sensible, much less scientifically valid, way to classify
people based on race. The Supreme Court has recognized that. We don’t put race
on birth certificates; race is no longer a legally relevant category except as
a self-identification. That must also happen with gender.”
I mean, that actually makes a lot
of sense. We don’t put our race on our identification, because it has no legal
relevance. Why should gender be relevant, except as an excuse to discriminate
against women? Minter further compares gender to religion.
“It would be shocking to think that the government could
define somebody’s religion. It needs to be just as shocking that the government
could define someone’s gender.”
Solomon points out that most of
what we assert as “masculinity” or “femininity” is culturally specific. Even
since the 1990s, I have seen a change in what many people - particularly right
wingers - consider to be sufficiently “masculine,” for example. Solomon quotes
from the Victorian Era - not that long ago in fact.
As I worked on this chapter, I kept returning in my mind to
Tennyson’s beautiful tribute to Arthur Henry Hallam, in which he wrote, “And
manhood fused with female grace / In such a sort, the child would twine / A
trustful hand, unask’d in thine, / And find his comfort in thy face.” Our
received notions of masculinity and femininity are a modern conceit. Though
Hallam was neither trans nor gay, his magnetism inhered in this blending of
strength and gentleness, boldness and compassion. I remember first reading
Tennyson’s lines when I was a teenager, thinking that he celebrated this friend
for the very qualities that most troubled me in myself. I wanted to be
something noble, not just a boy who had failed at real masculinity and was
making do. I wanted to emulate what was best in my father and mother, in the
life of the mind, to which men often stake first claim, and that of the heart,
in which women usually have the upper hand. I saw in Tennyson’s bracing words
an encomium not to an androgynous face, but to the intricate nature of beauty.
Masculinity and femininity here seemed not locked in binary competition, but
fused in collaboration. Anyone with an open heart should know that the world
would have ended long ago without the translators who convey male and female
meanings across gender’s fierce boundaries. It may be a recent phenomenon for
that to be an identity, but what has changed is the characterization of such
people - not their eternal merit, not their uncanny, necessary splendor.
Damn, that’s so good. I have said
many times over the last few decades that it seems like it was easier to be a
man in the Victorian Era. Not because of Empire or some silly notion of
masculinity, but because a man could show tenderness, emotion - indeed all of
the so-called “feminine” virtues and traits without having his manhood
immediately questioned. Hallam has become immortal, due to the luminescent
beauty of In Memorium - but these days, he would be called gay slurs,
and relentlessly bullied. Our current notions of gender expression really are a
modern conceit. And by that, I mean that they are not only far different from
the Victorian ideal, they are a far cry even from the 1980s or 90s. There truly
has been a rise in toxic, stunted views of masculinity, and everyone suffers
for it.
Solomon is correct that
transgender and other gender-bending people have always existed, and have
always been necessary. It is a blessing to the parent of a transgender
child, and it is a blessing to have one in one’s life.
There is one final passage I want
to mention in this chapter. Solomon ends with the idea that an ideal future
might be like the one in The
Left Hand of Darkness (although he doesn’t mention the book.) One in
which humans are able to choose their own gender at any given time, without
need for surgery or hormones, and without social approbation. Where one could
switch back and forth, and experience it all.
Like Solomon, I am cisgender and
comfortable in that, but both of us have wondered what it would be like to
experience life as a female. In particular, it would have been convenient had
my wife and I been able to split the burden of pregnancy and childbirth. Does
this mean I identify as female? Nope, not at all. I have no wish to present as
feminine other than the curiosity of “what if?” A world in which gender isn’t
so all-important and socially determinative does sound like a better world to
live in for everyone.
Father
This chapter is largely about
Solomon’s journey to fatherhood, which is a bit complex. I won’t attempt to
describe it all, but the end result is a very blended family including his
kids, his husband’s kids, and the women who are part of that extended family
system.
As a young Evangelical, of course,
I would have read this with horror. A broken home! Kids without a mother and
father in the same house! Assisted reproduction!
The horror.
But, as I rapidly approach 50,
having spent decades working in law, and observing alternative family
structures, I have come to understand that “family” is far more than the
“nuclear family,” which is another modern affectation anyway. And a way that
society and extended relatives avoid taking responsibility for the next
generation.
On the one hand, I have recognized
that despite the fact that my family was “stable” - my parents have been
married over 50 years - it was also highly dysfunction. Right now, it is
unfixably fucked up. So a “nuclear family” is not the panacea I was taught it
was.
On the other, I have seen numerous
blended families that were filled with love and connection, despite divorces
and remarriages.
I have also seen loving gay and
lesbian families where children have thrived.
It is all about the specifics. To
take the anti-Tolstoyan position again: Unhappy families are mostly alike.
Every happy family is happy in its own way.
In describing his initial
trepidation about becoming a parent, Solomon notes the societal prejudice, and
further argues that it is most virulent when it comes to people with
differences and disabilities choosing to reproduce. In the chapter on deafness,
for example, deaf parents who give birth to deaf children are often blamed, as
if choosing to have a child that shares a trait is automatically bad.
The right to reproduce should be among the inalienable ones.
Yet the prejudice against anomalous people is revealed most clearly when
members of horizontal identity groups who have the potential to pass on
aberrant traits decide to have their own children. Many people are outraged
when a disabled or challenged adult produces a disabled or challenged
child.
This all too quickly can mutate
into open eugenics. Because, after all, don’t most of us have some
undesirable traits we might pass on? For me, I know I am risking that my kids
will have cardiovascular disease, high cholesterol, and allergies. Should I
have foregone reproduction because of that? Should Solomon avoided having
children because they might share his dyslexia or depression?
Or, as Solomon points out, should African-Americans
not reproduce, because being black in the United States is a serious socioeconomic
disadvantage? Eugenics all the way down…
Disabled parents commonly are
castigated for birthing disabled children. But are they the only ones who
(arguably) care more about themselves than their potential children?
Yet self-absorbed parents everywhere exploit their children
for reflected glory on the soccer field, in the chess club, at the piano.
Narcissism is a myopia hardly limited to disability activists.
As technology progresses, it will
probably become easier and more affordable to select for specific traits. And
anyway, is that different than selecting a sperm donor with a high IQ, or a
specific hair color?
William Saletan, national correspondent at Slate,
wrote, “Old fear: designer babies. New fear: deformer babies.” Of course,
“deformer” babies are designer babies, too; they just don’t follow the most
popular designs.
Solomon pushes back against the
very idea that we can make “better” children at all.
I would propose that only by allowing people born with
horizontal identities not to change does one allow them to get better.
Any of us can be a better version of himself, but none of us can be someone
else.
He also notes that “diversity”
means a lot more than permitting women and minorities and gay people to
participate. It also means avoiding monoculture, which is inherently weak.
(Something white supremacists like Stephen Miller fail utterly to grasp.)
All of these horizontal identities
matter, because they enrich the whole, and add true diversity and thus
resilience.
I’ll end with a brilliant
paragraph that I think reflects my own experience as a parent.
When I was born, the common view was that nurture decided
almost everything. In the decades that followed, the emphasis shifted to
nature. In the last twenty years, people have talked more broadly about the
intricate ways that nature and nurture propel each other. I was intellectually
persuaded by this nuanced integration, but the experience of having my own
children has made me wonder if a third element is involved, some unknowable
inflection of spirit or divinity. One’s children are so specific, and the notion
that they wouldn’t exist if one hadn’t conceived them at the moment one did
feels impossible. Most of the parents I interviewed for this book said they
would never want other children than the ones they had, which at first seemed
surprising given the challenges their children embody. But why does any of us
prefer our own children, all of them defective in some regard, to others real
or imagined? If some glorious angel descended into my living room and offered
to exchange my children for other, better children - brighter, kinder, funnier,
more loving, more disciplined, more accomplished - I would clutch the ones I
have and, like most parents, pray away the atrocious specter.
Indeed.
There are so many good things in
this book: the compassion and empathy, the reminder that we as parents don’t
reproduce ourselves but in fact create new and unique humans, the countless
stories of human adaptation to challenges, the reminder that we all thrive when
everyone thrives, and the true commitment to the embrace of human diversity and
difference.
Both as a child and as a parent, I
find there is a lot to learn from this book and the many people who are in
it.